Australia’s first, and only MPN Forum has now finally arrived. MATES FORUM, might be a tad low tech’ to commence, as we endeavour to learn how to manage all its nuances.  However, it should be remembered that we are ALL just MPN patients ourselves, and therefore, any more serious questions requiring a medically trained professional response will be referred to, (hopefully a growing pool of MPN specialist over time), for that is part of the very reason why this website has been created… to help provide answers!
MPN are rare diseases, so being diagnosed can often feel isolating. But more people are being diagnosed and are living long lives, so you are not alone and there are greater efforts from both consumers and medical professional who work in this space to make living with MPN possible.
A/Prof Kate Burbury – Peter MAC Cancer Foundation
All patients share their experiences with the very best intentions, however, they are not medically trained individuals.
Any question/s requiring a professionally trained person’s assistance, and response will be referred but may take a little time to receive a reply…
Therefore, please always only rely upon your own independent advice, supplied from your own team of medically trained specialist and general practitioners…
While it is our desire that many people might feel less isolated by sharing their MPN journeys here with other MPNers… Another purpose of creating greater MPN awareness is to try to see more MPN specialists enter into the Australian arena. It might take some time, however, we believe that every journey starts with just one step …
In the greater scheme of things, we hope that these efforts will go some way toward joining Australia’s MPN practitioners up with many of their overseas colleagues, and counterparts, who will ultimately help to form a truly Global MPN network into the future…
See our SERVICES page to ‘Learn’ more…