A JEDI WARRIOR's TALE

[MPN-MATE Admin]

Morning everyone...

I am feeling quite chuffed and privileged today as we have just had someone that has always inspired my own MPN journey, (join us here at MATES), by penning his arduous account of what is was like to go through the whole process of having a Stem Cell Transplant (SCT) procedure.

Jedi Reject's story unfolds through his warm conversational tones, where he still finds a moment or two for some delightful humour in the midst of all this apprehension.

Very few, other than people with an MPN, truly grasp what some of adverse affects are like to experience when travelling along this path. However, through the courage of those who share their MPN Journeys with us, they are able to bring some hope, and some unity. Knowing, that none us are ever really alone anymore, because now we have each other...

There are many more MPN Stories available to read through, but Jedi Reject's is particularly special for me personally...

Here's the Link to the MPN STORY-TELLING Pages:

https://www.mpn-mate.com/mpn-story-telling/

Stay safe & well and very best wishes

Steve

[Merry]

Wow! An inspiring tale of overcoming adversity with love, strength and good humour. Thunderbirds are GO!

[SilverET]

Wow! What an amazing story and ballsy recovery, Jedi!
Thanks for sharing this.
I think the thing that stands out for me is your comments at the end about not regretting having the SCT even though it resulted in a severe rejection reaction that you had to overcome. I have been reading about how patients and medicos have different priorities with diseases like MPNs, where full recovery is unlikely and is more about managing symptoms and slowing progression. It seems that patients are much more willing to battle through much more pain and suffering, than medicos believe, in order to extend their time living, whereas medicos place more emphasis on quality of life (even though this often means a much shorter life). This is of course a generalisation and is not true for all medicos and all patients but what I have seen shows that people are able to withstand a lot more than the medical profession thinks we can. The chance to see my kid grow up and spend time with family is worth a fair bit to me.

SilverET