MATEs FORUM

Hi Steve ,
Sorry to hear this!

What a bad luck

Hope they find the guy, a despicable act and not stopping to help!

Hope you will be back on the mend soon.

Best wishes and speedy recovery
Leon

That is most probable outcome

Create artificial shortage and Rise Prices

Worked for Apple

Yes Steve , it seems what is happening now is triage to ration PEG, the real Shortage expected from: 01 Mar 2025

Hello All, TGA PEGASYS peginterferon alfa-2a 135 micrograms/0.5mL injection pre-filled syringe - medicine shortage information https://apps.tga.gov.au/Prod/msi/Search/Tradename//91836 TGA Shortage database https://apps.tga.gov.au/Prod/msi/search?shortagetype=All Anticipated shortagesSort by: Updated...

Thank you Sharon for this post Just want to share update on my side and from UK on Peg shortage and possible use for Besremi-problem is that it is not approved in Australia Apologies for long post as wanted to include all info Leaflet on Interferon https://www.mpnallianceaustralia.org.au/wp-content/...

Hi Sharon My name is Leon 61 with ET CALR Diagnosed 2017 and was on Hydrea up to 2023 2023 started Pegasys on 90 then 135mcg weekly and after changing to Dr Forsyth am now on 64.5mcg fortnightly I have never had blood in syringe, but did experience some issues like blood drop coming up on skin and p...

Hi Helen and welcome to this forum . My name is Leon 61 with ET CALR since 2017 I was on Hydrea until 2023 and since then on Pegasys interferon (67.5mgc fortnightly) I am managed by Cecily Forsyth I hope you will join our cafe meeting (Steve will announce) and get most of your questions answered Thi...

Hi Sue, Sorry to hear of your long journey. Welcome to the forum! The most important thing is you have diagnosis and found this forum,which is a great support and information. I was diagnosed with ET CALR in 2017 and am currently on HU @ 1000mg p/d for 6 days Similar problems ,cold fingers ,fatigue,...

Hi Kathie, Welcome to the forum. I was diagnosed in 2017 ( but possibly was living with it much earlier) ET CALR and struggled initially with no support.... This forum is great to chat to people and get advice and support Hope you get answers from RNS ,and Steve and others on forum have a huge knowl...