MATEs FORUM

Hi

This is so interesting! Thanks again .

Hope for everyone.

Best wishes.

Linda.

Hi ,

Very interesting read! Thanks for sharing it.

Linda.

Hi Steve,

Thanks very much

Linda

Hi Steve,

Apologies I never made the cafe catch up too many things going on .

Best wishes.

Linda

Hi Steve,

I’ve just seen confirmation Email for cafe catchup on the 10th of April at 18:00.

Linda

Hi Steve ,

Thanks very much for the really good advice. I have given what you say food for thought and I can see where you are coming from . Is your cafe catch up the 10th of April?

Kindest regards

Linda

Hi Steve , Sorry for the late reply. My temperature has been ok since I’ve been back on the antibiotics however, my face keeps flushing and a little prickly.I feel so much better than I did at the beginning of last week. Yes I’m going to discuss professor Harrison in London and professor Sommervaile...

Hi Steve, Yesterday I had a bit of drama, had a temperature of 38c . My GP was very supportive but, can’t really say that about haematologists. Couldn’t get through to them ! A telephonist Kindly ran up to the ward and explained my case. I was so frustrated with it all. Yes I’ve been thinking of get...

Hi Steve, I see my haematologist on the 7th of April however, I almost called them yesterday I felt so poo. That’s interesting how your red cells grew after 3 vaccinations Yes I think it’s time I had a full count run. HU is not nice I really don’t like taking it but unfortunately I don’t have much o...

Hello Socrates, I’ve just read your old message again about listening to your body. My attention drawn to headaches, tinnitus and brain fog in particular , this is happening to me! I’m just getting over covid and I’m so fatigued . My ferritin is low, and I’m on folate that’s low too. On Hydroxycarba...

Hi Warwick,

Just like to say your journey is truly amazing. Please

Keep going from strength to strength. You are inspiration to

all of us .


Linda from Shropshire,Uk

Hi Warwick

You are doing amazing !! Keep strong very best wishes to you.

Linda x

Very interesting! Found it extremely informative .

Than you

Hi Steve ,

Happy New Year to you too

I will certainly have a good read of that! It’s so good we have this site and MPN voice , otherwise things which are important to our health would just get over looked. Thank you for this info.

Stay safe

Linda ox

Hi Steve...☺️ I had a lovely Christmas thank you, hope you did too! Only problem for me was over indulging 😬I have no will Power!! Yes, let’s hope the New Year is better for everyone ☺️ We have gone into tier 3 most parts of the UK are in tier 4 total lockdown. Cases are rising dramatically everyday...

Hi Steve , This is a very interesting read. I also have read numerous Articles about the brain/gut association with Parkinson’s disease. This also takes me back to when I was a 10 year old child , I was rushed in hospital with suspected appendicitis , it turned out to be a stomach bug. 3 years ago I...

Good morning Steve Firstly , what a coincidence you and Hunter (Steven) have same first name . To great ambassadors for these horrible diseases. I was pleasantly surprised about my recent blood results. My nurse specialist said my platelets have hardly shifted from 926 to 949, HB 145, MCV normal fer...

Hi Steve No you have never made me anxious . I’m very pleased many of us have got you as a true ambassador for these dreadful disease. I don’t feel alone now I have found mates and mpn voice. It’s brilliant to know we have people especially like you and Hunter who have an extraordinary amount of kno...

Hello I have appointment tomorrow with my haematology nurse specialist for results of my most recent blood test. I am a little anxious in case they tell me I need to start Hydroxy . I realise from reading various sources the need for a Doctor who is an expert in this Field. So, I contacted my GP and...

Hi

I found this a very interesting read thank you

I Hope that I can also remain active. My independence is also important. I would like to be very creative .enjoy being with my beautiful family

Best wishes

Le5