MATEs FORUM

Thanks for your reply Katie. As yet I haven't had a BMB. I only have PV, and it seems due to my age and health venesection is the go to treatment over here. These medications are a bit confusing as I've never heard of them before, nor have they been suggested.

Thanks for the quick reply Steve. I thought it might be restless leg syndrome too. It's just horrible, and I don't sleep well at all, which makes me even more tired. I just wanted to know if it was related. I had some ģood news last week from the haematologist, the monthly venesections worked to low...

I have polythycaemia, I'm wondering if anyone else experiences pain, especially in the knees and leg bones particularly at night. I asked my haematologist about this, and was told polythycaemia probably isn't the cause, but then went on to say that if the symptom isn't common, then it's not counted....