MATEs FORUM

Hi Al,

Thank you so much for telling me your story, I really hope that is the case and I get to live a long life with my family. Everyone here has been so lovely and has some positive stories so it's been giving me a lot of hope.

Thanks
Carmel

Thanks so much for the reply Mark. I get the rest of my results tomorrow, I'm so scared as I can't handle anymore bad news. Once I have everything I will be making an appointment with Cecily! It's great you are doing well, I hope that will be the same for me as well.

C

Hi everyone, Sorry for the delay in response, we've had the day-care bugs and have all had a bad cold over the last few days. It's been rough! I just wanted to say thank you Jacqui and Kelly for responding. It's so nice to have support from people who understand. I'm learning so much from you all. J...

Good luck with your appointment Jacqui, I hope the platelets are down!

Thank you so much for your replies Steve, Rosie and Jacqui. Your stories gives me so much hope and are inspirational. They are very much needed for someone who is just learning about this illness!! I’m getting better each day but it has been overwhelming, as I feel like my life has been robbed from ...

Hi Everyone, My name is Carmel, I'm 38 with a 10 month old son, and I've recently been diagnosed with MF from having high platelets (740). I'm scared as I want to see my son grow up and I'm not really sure what the future holds for me. I've read some people can live a long life with this disease and...